Wednesday, May 11, 2011

Fine Tuning

We've started our last week of intensive here in Sikeston. It seems it's all about tweaking it! Lilly has now realized she can walk and is getting more confidence every day. I think it was yesterday that she walked 8 ft! So now that she's walking, we need to make sure all the supports are there to help her be successful.

Brandy, Lilly's therapist, has been measuring and measuring trying to see just why the alignment in Lilly's right leg is not normal. We have been "taping" it and that has helped some. I will be learning how to tape before going home. This issue may require us to make an appointment with an orthopedic doctor to have it monitored. We have also been trying a brace on that leg. It keeps the femur and tibia, or your thigh and shin, in alignment.

We tried on many pairs of shoes today too. Looks like we will be needing a more heavy duty shoe than the one we have. Luckily it's like 1/3rd the cost of the shoes we own now! In the video below she has those shoes on and is not wearing the AFO that has helped her last week. She looks really great in them!

Today we went to St. Louis for the appointment with the optometrist. Well, we have a script for the glasses! Can't wait to get home and find some adorable frames for her! Hopefully with the prism lenses, it will help with balance and overall better engagement with objects and people.

Our time is about up. Ready to go home! Started packing earlier tonight. Lilly and I miss everyone back home so much. It's tough being away but this place is really amazing and I'm so thankful to all of you that have made this trip possible! Everyone that purchased a pumpkin roll, you helped get us here! Everyone that helped bake pumpkin rolls, you got us here! And now our big girl is walking! Thank you to my family who helps with Gunnar while I'm gone. I couldn't leave him behind if I didn't know he would be spoiled rotten by the time we got home! Thank you for all the prayers and encouragement! God has been so good to us. He has given us this precious gift. Lilly just lights up our hearts and gives us sooo much more than we could ever give her!

I just found this video from Feb 2010. It was the last time we were in Sikeston. She learned to crawl but this is what her walking looked like. We've come a long way in a year!



This is from today, May 2011:

3 comments:

Garrett's Nana said...

LOVE to see her walking!! Sweet girl.

TherExtras said...

Quite the difference in a year!

I really like what I see - how the therapist 'handles' her. (Reminds me of myself!) ;)
Barbara (PT)

Anonymous said...

as a physcial therapist myself, I can only imagine how happy her PT is as well. I can see how she lights up your lives. may her successes only continue! Tina