For those of you new to our blog, I am the mom of 2 beautiful children, Gunnar is 9 and Lilly is 4. Lilly has a duplication on her 2nd chromosome. She has low muscle tone. Does not walk but just learned to crawl. She is non verbal but has her own way of communicating! We are blessed to have no major health problems. She is a joy!
2 comments:
Tara,
Thank you for sharing your day with Lilly with me. It gives me such insight into what you go through and what a wonderful lady you are.
I am looking forward to meeting you on Friday on our conference call with Susan.
Lilly is so cute! I hope to meet you both some time.
With Gratitude,
Sherri Moyer
To answer your question; yes! I face it too, especially when spending time around my neices who are Jenny's age. It is hard, not to be able to have a "real" two-way conversation, to know what your child is thinking or feeling...
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