Lilly's Big Adventure: Day 1 Standing in Cage no Suit

Friday, April 25, 2008

Day 1 Standing in Cage no Suit

3 comments:

Unknown said...: Wow!! What a great job Lilly!!

Love you,

Sonya; April 25, 2008 at 7:49 PM
Anonymous said...: WOW!!! What a video...Lilly you're a star!! You go Miss Lilly...great job!! I am so glad Dad & brother were up there to see what she is accomplishing!! We miss you all but are so thrilled with her progress!! See you soon! Love you all! Mark & Sandy; April 26, 2008 at 11:57 AM
Anonymous said...: Skylar thinks that looks like a lot of fun Lilly! We are so proud of you!

Daniel, Heather, Skylar & Luke; April 28, 2008 at 10:07 PM

Welcome!

I'll give you a brief history of Lilly and how we have come to this place. Lilly was born with a rare chromosome abnormality. It doesn't have a name like downs syndrome or fragile x. She has a duplication on her 2nd chromosome. We didn't know this when she was born. Around 4 mths we noticed she was just "floppy" and would not hold her head up. At 6mths we started physical and occupational therapy. Around 10 mths she was diagnosed. We saw geneticists and were told she was very rare and we didn't have a lot to go on. She would make her own story. And she has!

Lilly's Big Adventure

Friday, April 25, 2008

Day 1 Standing in Cage no Suit

3 comments:

Welcome!

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